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12:51
TED
Anna Greka
The world's rarest diseases — and how they impact everyone
Physician-scientist Anna Greka investigates the world's rarest genetic diseases, decoding the secrets of our cells through "molecular detective work." She explains how her team is using new, advanced technology to solve decades-old medical mysteries — and shows how this work could help develop precision treatments for millions of people ...
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Sep 28, 2023
Rare Disease Stories
0:39
🗓️ Tuesday, February 24 at 9:30am 📍 Big Night Live, Boston | Virtual options also available Through discussions and stories, Rare Disease Summit will spotlight innovation across drug development, diagnostics, funding, and policy – while centering the voices of patients and caregivers driving change alongside industry and research leaders. Speakers include: ✅ Dr. Wendy Chung, Chief of Pediatrics, Boston Children's Hospital ✅ Kristen DeAndrade, Founder and Executive Director, Little Legs Big Hea
Facebook
The Boston Globe
2.7K views
2 weeks ago
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17K views · 60 reactions | Stars bravely sharing rare disease stories in 2025! #CelebHealth #OliviaNewtonJohn #SelenaGomez #LadyGaga #Awareness2025 | Star Moment | Facebook
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Today is #RareDiseaseDay 2019! Watch and share the official Rare Disease Day 2019 video to see Lorena's story of living with Phelan-McDermid syndrome. Help raise awareness to break isolation for people living with a rare disease! #ShowYourRare National Organization for Rare Disorders, Inc. (NORD) Rare Diseases South Africa Rare Disease UK Rare Voices Australia Canadian Organization for Rare Disorders BBC News The Mighty BBC Stories | Rare Disease Day
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