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Being a mom with cystic fibrosis has brought many highs and lows — especially while navigating two double-lung transplants. Over the years, I’ve learned many lessons about what it means to parent ...
When I received a lung transplant as a child, I didn’t realize the trauma from that experience would follow me well into adulthood.
I tried to put school and work first, convincing myself my CF could wait. That is, until an infection stopped me in my tracks, leaving behind physical, emotional, and financial consequences.
My sister and I have shared so much — childhood joys, crowded bathrooms, and now, the fight for those still waiting for the promise of CFTR modulators.
Chest physical therapy (CPT or Chest PT) is an airway clearance technique (ACT) to drain the lungs, and may include percussion (clapping), vibration, deep breathing, and huffing or coughing.
People with cystic fibrosis and their families have faced significant cost burdens due to copay accumulator programs. Get caught up on these programs and what they mean for you and your loved ones.
The Cystic Fibrosis Foundation assembled a multidisciplinary committee to create consensus statements that provide recommendations to lung transplant clinicians on the management of CF-specific ...
When I decided it was time to start a family, I quickly realized that — just like living with CF — having a baby would mean preparing for the unexpected, especially when it came to finances.