I’m glad that my story was shared during the first plenary at the North American Cystic Fibrosis Conference that focused on the effects of modulators on people with CF.

I joined my local EMS squad to give back to my community, and that experience led me to pursue a career in medical assisting. Through anxiety, the pandemic, and personal challenges, I’ve stayed ...

When my daughter was first diagnosed with cystic fibrosis, the misinformation I found online only deepened my fears. But thanks to the guidance and compassion of our care team, I’ve realized life with ...

People who are diagnosed with CF late in life — I mean over age 50 — have different experiences from others in the CF community. We don’t just have different needs; we have different characteristics.

I was diagnosed with cystic fibrosis at birth, and in October 2019, I underwent a double-lung transplant. I wrote a song called “Forever Changed” as a letter to my younger self and my selfless organ ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...

“He who does not know how to look back to where he came from will never get to his destination.” — Dr. José Rizal I was a 19-year-old Filipino American with cystic fibrosis when I recognized my duty ...

When I was diagnosed with cystic fibrosis at 43, I thought I was living on borrowed time. Now, at 75, I’ve learned that I am not defined by the odds.

On behalf of the 272 undersigned organizations committed to the health of our nation’s mothers, infants, children, and families, we express our deep concern over the Administration’s recent decision ...