I've always approached new medications with caution, concerned about potential side effects. That hesitation is why it took me several weeks to finally try Pulmozyme for the first time.

Miracles happen when you least expect them. You manifest them for years, forget about them, give up on them completely, and then boom! You’re blessed with a miracle. In my case, this happened with a ...

This blog discusses substance misuse, abuse, and suicidal ideation. If you or someone you know is struggling with substance misuse, talk with your care team or visit samhsa.gov for support. As a child ...

My childhood was made up of adventures. Parasailing over the Gulf of Mexico, hot air balloon rides into the sunset, snorkeling in caves with stalactites hanging over head, and reaching the top of the ...

I was first diagnosed with cystic fibrosis earlier this year, at the age of 58. I am writing to share some thoughts I have about living with undiagnosed CF for the majority of my life. Looking back at ...

I wasn’t supposed to make it this far. I was born six weeks early, to parents who weren’t ready. They fought constantly, partied hard, and eventually split up. My sister went with my dad, and I stayed ...

Dear Senator Thune, Senator Schumer, Congressman Johnson, and Congressman Jeffries, The undersigned 43 organizations represent millions of patients and consumers who face serious, acute, and chronic ...

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...

I’ve found that one of the greatest misconceptions about living with a chronic disease is that it is purely a physical battle. Every difficulty — physical or otherwise — manifests emotionally. For ...

BETHESDA, Md. — The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the National Institutes of Health (NIH) that it will set the reimbursement rate ...

This blog discusses suicide and suicidal ideation. If you or someone you know is suicidal, please contact your physician, go to your local ER, or call/text the National Suicide Prevention Lifeline at ...

Our family’s journey has been a rollercoaster of challenges and triumphs since we welcomed our goofy boy, Owen, into the world. Now 20 months old, Owen’s life has already been marked by medical ...