While relocating to a new state, my family faced some unexpected hurdles. But with the incredible support of our community, we survived the journey.

On behalf of the undersigned NAIC Consumer Representatives, we offer the attached report examining the impact of federal policy shifts on health insurance access and affordability. The report ...

I've always approached new medications with caution, concerned about potential side effects. That hesitation is why it took me several weeks to finally try Pulmozyme for the first time.

The U.S. Food and Drug Administration has approved the use of ivacaftor (Kalydeco®) for children as young as 6 months. The U.S. Food and Drug Administration (FDA) has approved the use of ivacaftor ...

For more than 25 years, people with cystic fibrosis and their loved ones have helped raise awareness, support, and understanding of CF in the United States through national recognition events. Today, ...

Watching my mother struggle with cystic fibrosis until she ultimately passed away was heartbreaking. I never knew anyone with CF other than the two of us. However, she instilled in me a deep sense of ...

As a Latina mother of a child with cystic fibrosis, I aim to raise CF awareness and combat stigma in the Latino community by advocating for understanding, care, and support for families like mine. As ...

For many people, aging is an inevitable part of life, bringing with it the expected changes: wrinkles, slower metabolism, and the occasional creaky joint. But for those of us with cystic fibrosis, ...

BETHESDA, Md. — The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the National Institutes of Health (NIH) that it will set the reimbursement rate ...

This blog discusses suicide and suicidal ideation. If you or someone you know is suicidal, please contact your physician, go to your local ER, or call/text the National Suicide Prevention Lifeline at ...

The Cystic Fibrosis Foundation is funding the development of a gene editing therapy that is designed to use ReCode’s tissue-specific delivery vehicle to transport gene editing cargo to the lung cells ...