I tried to put school and work first, convincing myself my CF could wait. That is, until an infection stopped me in my tracks, leaving behind physical, emotional, and financial consequences.

My sister and I have shared so much — childhood joys, crowded bathrooms, and now, the fight for those still waiting for the promise of CFTR modulators.

Being a mom with cystic fibrosis has brought many highs and lows — especially while navigating two double-lung transplants. Over the years, I’ve learned many lessons about what it means to parent ...

When I received a lung transplant as a child, I didn’t realize the trauma from that experience would follow me well into adulthood.

When I decided it was time to start a family, I quickly realized that — just like living with CF — having a baby would mean preparing for the unexpected, especially when it came to finances.

We’re highlighting five creators who are helping raise awareness for cystic fibrosis. They’re voicing the many ways people experience the disease by sharing a part of their life through written and ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.

Growing older with CF is an unexpected, sometimes miraculous, and often daunting journey. But for all the challenges it brings, it also means we are redefining what it means to live with CF.