Saol Therapeutics received a CRL from the FDA for SL1009 (DCA) for treating PDCD, despite prior favorable designations. Addressing the CRL's issues will be costly and time-consuming, but Saol remains ...

In April 2024, Lily Cieslinski was diagnosed with Pyruvate Dehydrogenase Complex Deficiency (PDCD), a neurodegenerative disease impairing the body's ability to break down carbohydrates. Ever since ...

FOLSOM, Calif., Dec. 11, 2025 (GLOBE NEWSWIRE) -- The Hope for PDCD Foundation, a parent-led patient advocacy group dedicated to advancing research and treatments for the rare mitochondrial disease ...

March 18, 2024 – Cure Mito Foundation and Hope for PDCD foundation, both patient-led foundations focused on advancing research and supporting families affected by Leigh syndrome and Pyruvate ...

GRAND RAPIDS, Mich. — For families of children with pyruvate dehydrogenase complex deficiency (PDCD), a rare metabolic disorder, hope is tied to one drug: DCA. The treatment is given orally and works ...

The Cieslinski's are putting together Love for Lily: Hope for PDCD to help fund a cure for Lily and children like her. Every parent wants a healthy child, but when they're sick parents go to the ends ...

GRAND RAPIDS, Mich. — After their daughter was diagnosed with a rare condition, two Grand Rapids parents are making it their mission to keep her healthy with a fundraiser. Lily Cieslinski's parents ...

Cure Mito Foundation and Hope for PDCD Foundation, both patient-led foundations focused on advancing research and supporting families affected by Leigh syndrome and Pyruvate Dehydrogenase Complex ...

JACKSONVILLE, Fla. — The parents of four-year-old Harlow Higbee say they fear a treatment that has dramatically improved their daughter’s quality of life could soon be cut off for her and other ...